Well I made the switch over to Heparin from Lovenox yesterday. And all I can say is, it doesn't sting!!! Lovenox burns like hell. It burns going in and afterwards. The hardest part of the Heparin is that the needle seems to be so huge. But I'm sure I will get over that. And I have to fill my syringes, where as the Lovenox came prefilled. But I now know how to properly fill a needle. Oh and the other plus of the Lovenox is that it has a sheath that comes down over the needle after you use it. I just feel so unsafe tossing an exposed needle away, even if it is in the special sharps container.
December 20, 2008
December 3, 2008
Finally a break
Ontop of not having any appointments to go to today, I got some good news. No Gestational Diabetes. Yup! I passed my 3 hour tests. Thank God. Can you imagine me on a strickt diet ;) And then having to add 2 insulin shots on to of my 2 other daily injections. I told my Dr too, that If I was going to have to do insulin that I was done. Of course I would do what I needed to do, but now I dont have to worry about that! My only question is if I do not have the GD then what is the cause of my extra fluid??
Tomorrow is my weekly appt with the hematologist. We will see if he is going to switch my meds to something that can clear my system faster. Either way it is still a shot, so no big change there.
Yesterday was my appt with the GI Dr. He talked with the transplant specialist and they both agree that there is only a slim chance I will NOT need a transplant, but only time will tell. We talked about my pain and he said it is just because my liver is pushing my spleen out and that is what I am feeling on my side. Pretty nasty if you ask me. You can actually see it on my side. Maybe I should take a picture ;) And the best part is I dont have to go back to see him until after the baby is born, so that is one less appt to worry about. He said he will come visit me in the hospital.
Friday I have another non stress test and if that goes good then I will have to say its been a great week for us! And that would just be wonderful. Maybe things will start looking up from here.
Tomorrow is my weekly appt with the hematologist. We will see if he is going to switch my meds to something that can clear my system faster. Either way it is still a shot, so no big change there.
Yesterday was my appt with the GI Dr. He talked with the transplant specialist and they both agree that there is only a slim chance I will NOT need a transplant, but only time will tell. We talked about my pain and he said it is just because my liver is pushing my spleen out and that is what I am feeling on my side. Pretty nasty if you ask me. You can actually see it on my side. Maybe I should take a picture ;) And the best part is I dont have to go back to see him until after the baby is born, so that is one less appt to worry about. He said he will come visit me in the hospital.
Friday I have another non stress test and if that goes good then I will have to say its been a great week for us! And that would just be wonderful. Maybe things will start looking up from here.
November 29, 2008
Another busy week
I have 4 appointments coming up. I understand why I need to go so often, but Im so tired of it all.
Monday I have a stress test.
Tuesday I see the GI Dr.
Thursday I see the hematologist.
Friday its another stress test.
I know my mind will be put at ease, getting to hear the baby twice a week. But ontop of all the other Dr.s I get so worn out. And to think that once this little man is born, thats when the rest of the test start. More bloodwork, x-rays and scans. More doctors. My arms are still bruised from last weeks round of tests. I am tired of having wake up early to inject and having to be home early to inject again.
Around 33 weeks I will be switching from Lovenox to Heparin. Still an injection. And then at 35 weeks we will do an amnio. I am just praying that this little man can wait that long. For now its just a waiting game.
Monday I have a stress test.
Tuesday I see the GI Dr.
Thursday I see the hematologist.
Friday its another stress test.
I know my mind will be put at ease, getting to hear the baby twice a week. But ontop of all the other Dr.s I get so worn out. And to think that once this little man is born, thats when the rest of the test start. More bloodwork, x-rays and scans. More doctors. My arms are still bruised from last weeks round of tests. I am tired of having wake up early to inject and having to be home early to inject again.
Around 33 weeks I will be switching from Lovenox to Heparin. Still an injection. And then at 35 weeks we will do an amnio. I am just praying that this little man can wait that long. For now its just a waiting game.
November 20, 2008
Early weekend :)
I called it. As of today, the weekend has started! For me anyways. Tomorrow I have no appointments and I have already told every Dr I saw this week not to call me on Friday. I am beyond drained. Mentally and phisically drained. Considering I had blood draws 3 days in a row this week. Now if only I didnt have to wake up at 8 every morning and do my morning injection. I was doing them later, but was having to work my appointments around my med times, so I moved to 8am and 8pm. Hopefully I wont be kicking myself in the a$$ for it, I am not a morning person...at all. But I figure I can always just get back in bed afterwards. And I wont have to stay up to take it at night.
My Hematologist didnt seem to concerned about my hemoglobin levels. Unlike the Trans. Specialist who was upset that no one had mentioned it to me. And everyone wants to know when my delivery date is, but my Ob and Peri wont give me a date. I see them Monday and Tuesday and would love an answer by then. I am demanding it actaully, in a nice way:)
Everyone feels the need to remind me that its only going to get harder and worse once the babys born. So much for support eh. I know they are trying to prepare me for whats to come, but I know this already. I know Im going to get sick. I know there will be more Drs, hospitals, meds and bloodwork. But for now Im tired of it. Maybe next week I will feel better, but for now, Im sick and tired of it all.
My Hematologist didnt seem to concerned about my hemoglobin levels. Unlike the Trans. Specialist who was upset that no one had mentioned it to me. And everyone wants to know when my delivery date is, but my Ob and Peri wont give me a date. I see them Monday and Tuesday and would love an answer by then. I am demanding it actaully, in a nice way:)
Everyone feels the need to remind me that its only going to get harder and worse once the babys born. So much for support eh. I know they are trying to prepare me for whats to come, but I know this already. I know Im going to get sick. I know there will be more Drs, hospitals, meds and bloodwork. But for now Im tired of it. Maybe next week I will feel better, but for now, Im sick and tired of it all.
November 17, 2008
Transplant Institute
Today I met with a Dr. from the Transplant Institute here in town. While it took a while for him to come in(he was at lunch, once he came in things sailed along. When I first went in, they put one of those hospital bracelets on and I thought they were going to admit me or something. Anthony got to watch me get weighed, temped and by BP checked. Then he sweetly asks "do you feel better now momma" Of course as soon the nurse started writing down my history, Anthony had to get out his paper and crayon and act like he was a nurse too. Then the boys left and it was just me.
Dr. O is very nice. He accepted my sarcasm, so he works for me. He was very thorough in asking questions and answering mine. It was pretty much a meet and greet and to get my name and info in to their system. A million and one questions. He felt around my tummy and was hoping to feel the baby move but he was still as ever. He showed me diagrams and explained the blood flow patterns in the body and showed me where my clots are. Then we talked about a plan. Which isn't much of one at the moment.
I go back in a few weeks to have sonograms of my liver and neck. My liver so that he can have his own films. And my neck to make sure that there are no clots in my coratid artery. I guess he felt that my pulse was stronger in one side than it was in the other and wants to rule out clots there. Fingers crossed that's all clear. He also wanted to talk with his head surgeon about what would be the best type of shunt for me. He wants to make sure no veins or arteries are damaged so that when transplant time comes things will OK to connect to. Another thing I learned today is that you can get varicose veins on you esophagus. Which he wants to do an endoscopy to make sure I don't have them. That would be another serious complication.
After that, I got my picture taken. Took a walk next door for some blood work and we were on our way....4 hours later:) All in all a pretty uneventful day, but it had to be done and is now out of the way.
Dr. O is very nice. He accepted my sarcasm, so he works for me. He was very thorough in asking questions and answering mine. It was pretty much a meet and greet and to get my name and info in to their system. A million and one questions. He felt around my tummy and was hoping to feel the baby move but he was still as ever. He showed me diagrams and explained the blood flow patterns in the body and showed me where my clots are. Then we talked about a plan. Which isn't much of one at the moment.
I go back in a few weeks to have sonograms of my liver and neck. My liver so that he can have his own films. And my neck to make sure that there are no clots in my coratid artery. I guess he felt that my pulse was stronger in one side than it was in the other and wants to rule out clots there. Fingers crossed that's all clear. He also wanted to talk with his head surgeon about what would be the best type of shunt for me. He wants to make sure no veins or arteries are damaged so that when transplant time comes things will OK to connect to. Another thing I learned today is that you can get varicose veins on you esophagus. Which he wants to do an endoscopy to make sure I don't have them. That would be another serious complication.
After that, I got my picture taken. Took a walk next door for some blood work and we were on our way....4 hours later:) All in all a pretty uneventful day, but it had to be done and is now out of the way.
November 11, 2008
Drs Update
Well I saw the GI on Monday and my OB today. Not much news.
I love going to see my Dr. H. Its always a short wait and hes so great about explaining things in normal people language. He says that there is still a 10% chance I will not need a transplant. And says that the hope I need to hang on to. He explained how the TIPS Shunt procedure goes. And said that it will be done a few weeks after I deliver. We talked about my choices for transplant teams and I called the one I picked to have them set me up with a consultation. It isn't easy getting into the system, so he is having me do it now. That way if in 1 year or 9 years, I do need it, I will be set up and ready to wait on the list:) That was about it. I go back in a few weeks again for another check up. I'm hoping to hear back from him on how my liver enzyme test is. Hopefully all is still good there
Today it was the OB. Which means a long wait in the waiting room for a few mins with the Dr. I really do like Dr. A, just wish the wait wasn't so long. She always takes her time and answers all my questions. If she can. We talked about my fluid levels being to high. She said that they were not to high for concern, and says its most likely because of everything else that is going on in there. We talked about steroids and an amnio. And she is going to talk to my GI about the chest pain and see if I can get into see a Cardiologist just to be safe. Hopefully I will hear about that soon. And I have to do my Glucose test next week. I don't know what I will do if I fail. I cant take anymore shots. But she said there is always diet and pills first. Thank God..again:)
Next week its back to the Hematologist and who knows what that will bring about, but hopefully its something good. I'm so tired of bad news. Ive got to hit at least on good thing sooner or later. Other than that things are good. I can feel myself getting weaker by the day, and I am having a hard time eating. So I spend most of the day in bed and get up to eat as often as I can. I have lost 5lbs but the Drs say that is the least of my worries. Just to keep hydrated and keep eating healthy. Just keep swimming right?!?
I love going to see my Dr. H. Its always a short wait and hes so great about explaining things in normal people language. He says that there is still a 10% chance I will not need a transplant. And says that the hope I need to hang on to. He explained how the TIPS Shunt procedure goes. And said that it will be done a few weeks after I deliver. We talked about my choices for transplant teams and I called the one I picked to have them set me up with a consultation. It isn't easy getting into the system, so he is having me do it now. That way if in 1 year or 9 years, I do need it, I will be set up and ready to wait on the list:) That was about it. I go back in a few weeks again for another check up. I'm hoping to hear back from him on how my liver enzyme test is. Hopefully all is still good there
Today it was the OB. Which means a long wait in the waiting room for a few mins with the Dr. I really do like Dr. A, just wish the wait wasn't so long. She always takes her time and answers all my questions. If she can. We talked about my fluid levels being to high. She said that they were not to high for concern, and says its most likely because of everything else that is going on in there. We talked about steroids and an amnio. And she is going to talk to my GI about the chest pain and see if I can get into see a Cardiologist just to be safe. Hopefully I will hear about that soon. And I have to do my Glucose test next week. I don't know what I will do if I fail. I cant take anymore shots. But she said there is always diet and pills first. Thank God..again:)
Next week its back to the Hematologist and who knows what that will bring about, but hopefully its something good. I'm so tired of bad news. Ive got to hit at least on good thing sooner or later. Other than that things are good. I can feel myself getting weaker by the day, and I am having a hard time eating. So I spend most of the day in bed and get up to eat as often as I can. I have lost 5lbs but the Drs say that is the least of my worries. Just to keep hydrated and keep eating healthy. Just keep swimming right?!?
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