Hope Whispers

September 1, 2015

30 Things About My Invisible Illness You May Not Know

Invisible illness week is this month (September 28th - October 4th)  I have so much I would like to share about my illnesses but have somehow gotten away from that.  So Im kicking off the month with this fun meme I found over at Invisible Illness Week.

1. The illness I live with is: Budd Chiari Syndrome/ Prothrombin G20210A
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: All the way back to highschool.
4. The biggest adjustment I’ve had to make is: Not being well enough to be the mother and wife that I want to be.
5. Most people assume:  That I feel ok because I smile and push on.
6. The hardest part about mornings are:  Trying to wake up after just a few hours of sleep.
7. My favorite medical TV show is:  Hmmm Does NBS's Night Shift count?  I miss Rescue 911!
8. A gadget I couldn’t live without is: My phone.  
9. The hardest part about nights are:  Not being able to sleep or get comfortable.  Its hard for a belly sleeper to sleep well with a liver that is doubled in size.
10. Each day I take __ pills & vitamins. (No comments, please) Right now I only take 2 meds in the morning and 4 at night.  
11. Regarding alternative treatments I:  will entertain anything but I have faith in my doctors.
12. If I had to choose between an invisible illness or visible I would choose: Visible. Its easier to explain things others can see.   
13. Regarding working and career:  I would love to go back to work after my transplant, but what or where, I have no idea.
14. People would be surprised to know: I was told my best option was to terminate the pregnancy that alerted me to my illness. 
15. The hardest thing to accept about my new reality has been: My health is only going to get worse before it gets better.
16. Something I never thought I could do with my illness that I did was: Have a baby. I was diagnosed during my pregnancy and in the very back of my heart a voice said it wouldn't work.  It did.  And my little man is amazing!
17. The commercials about my illness: That would be interesting to see.  There are none yet.
18. Something I really miss doing since I was diagnosed is: Having a beer with the hubby.  
19. It was really hard to have to give up: The idea of working to help support our family.
20. A new hobby I have taken up since my diagnosis is: Reading
21. If I could have one day of feeling normal again I would: Spend the day with my family doing something crazy like zip lining and spend the night with the hubby having a few drinks. FYI- my liver disease was not caused by my love of a good drink!
22. My illness has taught me: That I am stronger than I thought I was.  And all the days I thought were so bad, were nothing.
23. Want to know a secret? One thing people say that gets under my skin is:  I wish I could stay at home all day and not have to work.
24. But I love it when people:  That they know I am trying my best.
25. My favorite motto, scripture, quote that gets me through tough times is:  "When the world says "give up."  Hope Whispers "try one more time."  Story of my life!
26. When someone is diagnosed I’d like to tell them:  They are not alone.  
27. Something that has surprised me about living with an illness is:  How many friends will depend on you since you are always there, but not ever ask how you are doing!
28. The nicest thing someone did for me when I wasn’t feeling well was: Bring me goodies.  Once when I had zero appetite a friend brought me protein smoothie popcicles.  And just yesterday another brought me lunch since I couldnt make it to the restaurant.
29. I’m involved with Invisible Illness Week because:  It needs to be shared.  No one can see it.  And if we don't talk about it, they never will!
30. The fact that you read this list makes me feel: like I could really make a difference.
Do you or anyone you know live with an invisible illness?  


August 31, 2015

Menu Plan Monday: August 31st

How is it already the end of the month?  Time just keeps sneaking past me.  Its time to start thinking about fall meals.  Fall is my most favorite time of the year.  We don't get much of a season change here but, I can feel it.  And the food gets better.  Soups and stews and roasts oh my!  The crock pot stays on the counter much to Davids pouting!  Until then, we are sticking to the lighter meals for now.

Tonight we are having grilled chicken salads and chicken noodle soup for those of us feeling under the weather.  

Taco Tuesday: Steak Tacos

Wednesday: Rollover Meal.  Never got to the salmon last week.  But I think I will try this Parmesan Crusted Salmon with Broccoli.

Thursday, Friday and Saturday we are winging it.  David took time off.  I repeat, he actually took time off! So, we are not sure what we will be up to those days.  But maybe it will involve him cooking and me reading?  A girl can dream right?  Is it Wednesday yet?

Anyone else just love all things fall?


August 28, 2015

10 things that made me happy this week


The first week back to school is always a little crazy. But this year has been a little different. Its been, dare I say it?  Smooth and happy!

  1. The boys are loving school and their teachers.
  2. My neighbor helping me out with getting the boys after school.
  3. David. He keeps me on my toes. Love him!
  4. I finished reading Grey and am almost done with my book club book.
  5. A free Scentsy bar and a sweet note. 
  6. I was able to help a friend out. Well Grandma drove but, still.
  7. New nail polishes in the mail.  
  8. I met my medication deductible!  
  9. We finally cut cable.
  10. We aren't out of the woods, but Morris seems to feel much better!

I hope everyone had some happiness in their week.  And even more this weekend!  

What made you happy this week?  Share below or link up with The Flynnigans or Why Girls are Weird and share the happiness! 



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