November 1, 2012

Why write?

nhbpm squaread2012
Day 1.  Why I write about my health.

What is the first thing you do when you are diagnosed or get sick?  I know what I did.  I Google'd it!  I had been blogging for a few years on a family blog, so I thought I would search and see if I could find a blog about living with Budd Chiari.  I found next to nothing.  A few articles.  A blog that hadn't been updated in months, left me feeling like I was the only one out there.  I new it was rare, but all I wanted was to see that someone else made it through it and lived to tell the tale.

Over the past few years, I have met more and more people who have BCS.  Many who are stable and doing well and sadly a few who are very sick or have died. Mostly though Facebook and Twitter though.  I have not come across another BCS blog.  That is another reason I keep writing.  Hoping that the next person out there who has to Google "living with Budd Chiari Syndrome"  will know right away that they are not alone.

Writing has always been therapeutic for me.  I've had a journal for as long as I can remember.  I've also been a very open person so the happy middle of the two is this blog.  A place where I say what I am thinking.  Sometimes I over share and sometimes I hold myself back.  Many people say that they can almost hear my voice when they read because I write as I would talk.  This blog is 100% me.  The good the bad and the ugly.  This is my life on the liver transplant list.

I love hearing from those of you who are affected by BCS.  I have had many people reach out and share their stories with me.  This is a journey I wouldn't wish on anyone.  So being able to talk to others who know  just exactly what I am talking about is nice.  And not just my liver disease, but any of them.  And other transplant patients too.  Its amazing, the little transplant family I have come to collect since starting this blog.

1 comment :

  1. My name is Alex, I am from Ukraine, I am 32 years old man. I don't smoke cigarettes and don't drink alcohol. My blood is O+ and I have a good health. If you need liver transplant I am ready to give part of my liver, but I want to receive a big compensation for that.

    P.S. This is not a joke and I am not a scammer or cheater.