April 22, 2013

A fight worth fighting #HAWMC

Day 22 (April 22) – Day to Day
Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. Today’s post was recommended by Abigail of http://hiddencourage.wordpress.com/

This past week I have been constantly reminded of how blessed I am.  I have had so many people step up or reach out to me and it really means so much to me.  You know that feeling when someone does something  for you and no matter how simple it is, it still leaves you smiling all day?   Its been one of those weeks.

Thursday I started my Lovenox injections again.  I am having some dental work done and so to minimize the bleeding I switch over to the shots.  Sounds like fun right.  Twice a day self injections.  I've done them so many times that I have outgrown my fear of needles.  However my thighs are filled with scar tissue now and the thought of poking my stomach just scared the daylight out of me.  So one day on the way home I asked my friend if she would do them.  With out hesitation she agreed.  And David took the weekend shift!  I managed to do a few in my belly and now am more comfortable with it.  I let the fear stop me but they were there for me when I couldn't be there for myself!  

A few days earlier, I received a phone call from a friend who went on to tell me about how she woke up and thought of me.  She said she wanted to bring me over something and later that day she gave me a paper with a list of healing scriptures.  The very same ones she said with her mother who was hospitalized and is now doing so much better.
14 Is anyone among you sick? Let them call the elders of the church to pray over them and anoint them with oil in the name of the Lord. 15 And the prayer offered in faith will make the sick person well; the Lord will raise them up. If they have sinned, they will be forgiven. - James 5:14-15
I have also received a handful of emails from the blog from others who have been diagnosed or have had a love one diagnosed recently with Budd-Chiari Syndrome.  I remember in the beginning feeling so alone.  There was no other blog out there who talked about live with BCS.  No one to compare and talk to. No one who could inspired me and help me.  I was alone.  So when I get emails that say things like "Thank You from the bottom of my heart for writing this blog" and "I have so many questions about how you manage day to day life and what you eat and drink."  This is exactly why I do this.  I don't write for comments or pity.  I write because somewhere out there is someone who is new to the club and all alone.  Because that person can only read so many trial papers before they are scared out of their minds and believe that there is no way they are going to come out of this fight alive.  I talk about it because no one else is but everyone needs to know.

These are the little things that keep me going.  Knowing I have a family and friends to fight for.  That I have people who honestly care and want to help me though this part of my life.  Because if I can help even just a handful of people know that they are not alone and that this is a fight worth fighting, it will all be worth it.  

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