February 22, 2012

Liver Clinic Update

#1 Liver Transplant Program in the USA!!!

Today was my follow up appointment at the liver clinic.  Its been 5 months.  The appointment itself wasn't all that helpful.  It was quick.  The Dr I saw today was nice, don't get me wrong, but I miss my old Dr.  who never seems to be in anymore.  And I'm just not very comfortable with any other the others.  I feel bad saying that.  But its how I feel.

I spent more time with the RN who did my vitals and entered my info.  My new medication to be added was Vitamin D. We added my dizzy spells and swelling legs to the chart.  I can always tell when somethings up with theses guys.  He asks me, "Hey, what does your blood pressure usually run?"  I told him its been so low at times they cant even find a pulse in my wrist.  No Joke.  Today it wasn't so bad. 98/60.  But he did have a hard time finding my pulse.  He said it was so faint.  No one has ever made a big deal about it, so I never asked.

The Dr came in did his thing.  Tapping on my belly, checking my ankles for swelling.  The whole deep breath in thing.  The only thing he really brought up was that I needed to have another endoscopy done to check for varices.  Not big news to me since it was written down in my questions to ask already.  He said he was going to schedule it but never got back to me on that.

I asked him why I didn't have a shunt and he says "Well because your Vena Cava is clotted too."  He explained that it wouldn't be helpful to reestablish blood flow in to a vein that isn't open anyways.  Then he mentioned a shunt straight from the liver to the heart and told me that he has done two of them.  One went very well and one went VERY BAD.  No thank you.

I asked him about a liver biopsy.  I had it written down in my notes to expect one every 2 or 3 years.  And he said that at this point it wouldn't really matter what they found because they already know they don't want to do anything until something happens and I have complications.  Not anything new but still very disappointing to hear.

So with that, I was on my way.  Getting my lab work done.  I will call tomorrow and get my MELD score.  On the way home my arm sprung a leak and I bled through my bandage on to my nice only worn twice shirt.  Then though a few napkins too before stopping.  My guess is my IRN is high.  Ill find out tomorrow when I call.

Until then!  That's all I got.  Much love to you all!  Thank You for your constant prayers and well wishes.  They mean the world to me.


  1. Sending you lots of hugs - being careful of the bloody arm. :)

  2. Wishing you good luck and hope for answers! Christine Fortunato

  3. I wish I could give you mine cause I would :( I love and miss you with all my heart and I wish they would just do something now!