Ive been meaning to update, but just haven't found the time or energy. Last week I found out that the lump in my neck/shoulder isn't what Drs have been saying it is for the last year. Here's the story of the lump :)
October 08, I'm pregnant, just diagnosed with Budd-Chiari and my blood disorder. And the lump on my neck that I though would just go away after a few months, is still there. So I make an appt and go in to see what the Doc thinks. Ultrasounds are done and its said to be a lypoma. Just a ball of fat, that will disappear after I lose my baby weight.
Next I bring it up to my transplant Doc at one of my visits after I had the baby and he decides to order a MRI with contrast. Its scheduled for April 09, a day after my liver biopsy. The following month I go to see him and he tells me that what it "really" is, is a hematoma! A bleed in my muscle. OHHHHH, ok so end of story, OBVIOUSLY not.
I see a hematologist every month to measure my bloods INR. So I mention my newest diagnosis and he says he doubts that, because it to hard. What the hell already! So now a year later, I went back in for another ultrasound so that my Hematologist can compare the image with my first one. He was looking to see if it had grown and was talking about having a biopsy done. So I go in, and the nurse starts my ultrasound, then lets me know that shes going to get a Dr. At this point I'm freaking out. The last time an ultrasound tech got a Dr, it was to tell me that my liver was huge. I tried sending David a text, but the signal was cut. So I played some solitaire on the phone while I waited. Only thinking the worst of course. Then in comes a Dr, they continue looking and then the Dr asks me what I was told this was. I said first a lypoma, he says No. I say then a hematoma, he says no again. Then he tells me that its a mass, a solid mass and that he would feel better if it just came out and fast. He said he wouldn't even bother with a biopsy till its out. And then he left and the lady walked me out to the hall where the boys and my MIL were waiting.
My head has been all over the place since then. What is a mass anyways? Cancer or not? When will this surgery be? How long will I have to stop breastfeeding? How much will this cost? Why me? Who ever said God will never give us more than we can handle, might be wrong. Because I feel like Im drowning in bad news. Just a bit of good news would be nice. Anything!
October 08, I'm pregnant, just diagnosed with Budd-Chiari and my blood disorder. And the lump on my neck that I though would just go away after a few months, is still there. So I make an appt and go in to see what the Doc thinks. Ultrasounds are done and its said to be a lypoma. Just a ball of fat, that will disappear after I lose my baby weight.
Next I bring it up to my transplant Doc at one of my visits after I had the baby and he decides to order a MRI with contrast. Its scheduled for April 09, a day after my liver biopsy. The following month I go to see him and he tells me that what it "really" is, is a hematoma! A bleed in my muscle. OHHHHH, ok so end of story, OBVIOUSLY not.
I see a hematologist every month to measure my bloods INR. So I mention my newest diagnosis and he says he doubts that, because it to hard. What the hell already! So now a year later, I went back in for another ultrasound so that my Hematologist can compare the image with my first one. He was looking to see if it had grown and was talking about having a biopsy done. So I go in, and the nurse starts my ultrasound, then lets me know that shes going to get a Dr. At this point I'm freaking out. The last time an ultrasound tech got a Dr, it was to tell me that my liver was huge. I tried sending David a text, but the signal was cut. So I played some solitaire on the phone while I waited. Only thinking the worst of course. Then in comes a Dr, they continue looking and then the Dr asks me what I was told this was. I said first a lypoma, he says No. I say then a hematoma, he says no again. Then he tells me that its a mass, a solid mass and that he would feel better if it just came out and fast. He said he wouldn't even bother with a biopsy till its out. And then he left and the lady walked me out to the hall where the boys and my MIL were waiting.
My head has been all over the place since then. What is a mass anyways? Cancer or not? When will this surgery be? How long will I have to stop breastfeeding? How much will this cost? Why me? Who ever said God will never give us more than we can handle, might be wrong. Because I feel like Im drowning in bad news. Just a bit of good news would be nice. Anything!