April 30, 2012


Todays Promt:  For today’s post we’re going one further and putting your words into an image, a word cloud or tree representing YOUR health focus, interest, or passions. Which of the words in your cloud do you identify with most? Which do you write about most? Which surprised you?

word cloud2

Three words that I relate to are waiting, prayers and hope.  Its what I do every day.  The waiting part of this journey is one of the hardest.  Every day I wake up wondering if today will be the day I see a big change in my condition.  Every day I pray.  Not just for me, but the other 114,000 and counting that are waiting with me.  And without hope, I would have nothing.  So everyday I hope. I hope for the strength to be here for my family.  I hope for more time.  I hope for less fear.  I hope more organ donors.  Everyday, I hope.

The words that most surprised me were fear, tears and disease. I always try to not let my fears get in the way of my living.  But sometimes when you are sick, its so easy to let it take over you and keep you from doing what you love.  Through this journey over the last 4 years, I can count the number of times that I cried on one hand.  Ok, maybe both hands.  Sometimes crying helps, yes, but for me mostly it just makes my head hurt and that just sucks.  So I laugh.  Its what I do.  Disease was tough to write.  Always has been.  When people say disease, most people run in the other direction.  In the beginning, people would ask me what "disease" I had and I would cringe at what was going though their minds.  Like it was taboo. Condition seems so much more appealing.  But now I say what ever!  I have a liver disease.  I did not do this to myself, no one gave it to me, it just happened and it is just another part of who I am.  

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